Game Plan is Changing
Posted November 6, 2013on:
Okay. Just got back from the cardiologist, and here is the latest.
I am not the ideal candidate for open heart surgery, or even for the ablation. We already knew that. My age, my weight, yadda, yadda…
The other problem is that I am presenting oddly. For one thing, my heart’s septum distortion is 15. Normally, people with the amount of disability I’m having present with a much higher distortion. For another, the relatively small amount of drugs I am getting are slowing my heart down to 55. So they cannot presently give me greater amounts of drugs because there is a risk of slowing my heart down too much. Dr. S. has found a surgeon for me, but the surgeon has the same issues that Dr. S. and I both have about me undergoing surgery at this time.
The current plan, therefore, is to set up an MRI to doublecheck the amount of distortion, because there is a possibility that the echocardiogram under-represented that. Dr. S. is also changing out the 25 mg of carvedilol (twice a day) for 50 mg of Metoprolol (twice a day). After we get the result of the MRI, he will possibly schedule a CAT Scan of the head, neck and chest to see what is going on with my voice. Once we have those ducks in order, he will likely have a pacemaker put in, so that he can give me larger doses of some of the meds. My next few weeks will clearly be filled with doing some internet research, and making up some more questions to add to the list I’ve been keeping.
I know that caution is warranted. I know that I’m really glad my doctor is conservative in his treatment plans. But, dammit, I really want my life back. The problem is that, given how un-ideal of a surgical candidate I am, the big risks with open heart surgery are that a) I might not survive the surgery, and b) I might not be incredibly functional afterwards because of the issues that make me a less than ideal candidate. Dr. S. and I both agree that if stubborn were the major thing I need I have that in spades, but we also know that open heart surgery — especially when it means shaving off some of the heart wall as well as fixing the valve — is a big, damned, risky thing.
Meanwhile, I’ve been dealing with it about as well as possible. Marc, Abby, and a host of other folks make sure I get out of the house at least once a week, so I don’t just sit and obsess about how little I can do. I have been taking on as much work as I can, because work is always a good distraction. I’ve been reading, and even logged back into a couple of social games on Facebook, so that I’m not becoming too isolated.
I know I need to lose weight, but I am having trouble getting over myself and doing what I know works. I’m really resentful that I have to do it all over again. It took me two years to do it last time, and I was healthy and could walk a lot then. The gods know how long it will take without my being able to walk the way I used to. Honestly, the weight depresses me more than the heart issue. I was born with the heart issue and could not have done anything about it, because – until it triggered – no one even knew it was there. The weight – well, I’d lost most of it before I crashed and burned, and then, when I couldn’t go walking anymore, it all came back. So now I have to do it again, without the one exercise I love best in the world. I really need to get over myself, and go back to Weight Watchers, or at least start doing it at home or something, but I am just so frustrated about the whole issue. It’s the one whole part of this thing that makes me want to run away and hide. I’m trying to figure out how to get myself back to doing Weight Watchers, because I know that if I don’t go into it committed to doing it and doing it right, I will half-ass it and just be setting myself up for failure. And that’s the one thing I don’t have the option to fail at this time.
So, that’s where things are at right now. If any of you who know me well enough have ideas on how I can get over myself and get my ass back in gear, please let me know. Every day I can’t manage to do it makes a real difference at this point.